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Kaitlin just loved her puppy, Jasmine, and our cat, Shadow.
Anything that was soft and furry always made her laugh. The "kids"
always joined her for her morning and afternoon cartoons. Kaitlin's
favorite theme was Sesame Street; her room was filled with everything
we could find for Sesame Street. Because Kaitlin's eyesight was
impaired, she relied mostly on auditory stimuli. Anytime a Sesame
Street character would speak her face would light up; she loved
listening to the videos. She seemed to especially like action
movies, especially the explosions! Kaitlin was such a happy little
girl and loved to hear her name called; she would laugh so hard
when mom or dad would say "Kaitlin Bell" in a sing-song
way. She laughed when she heard the theme song to Jeopardy or
The Fresh Prince of Bel-Air! If she was upset, she would calm
down when she was hummed the theme to Hawaii Five-O. Unless she
was not feeling well, which was rare, she always had a smile
on her face.
Kaitlin attended several special schools in Delaware including:
The Katie L. Handy Orthopedic Facility in Seaford; and The Meadowood
and John G. Leach Schools in Wilmington. The emphasis for Kaitlin
was placed on oral feeding, motor control (holding her head up,
sitting upright, reaching and grabbing, etc.), and learning to
activate toys with special switches. Some emphasis was also placed
on bearing weight on her legs for standing and coordinating leg
movements for walking. Over the three years following her car
accident she had many therapists. Physical, Occupational, and
Speech Therapists along with Special Education Teachers and aides,
Visual and Hearing specialists, and multiple physicians, were
among the many that spent time with Kaitlin to help her achieve
these goals.
Kaitlin accomplished many things never thought possible. Her
head control and her sitting posture were improving. She was
eating everything by mouth and she loved pudding; but she didn't
like ice cream because it was just too cold; what a face she
would make! Kaitlin had lots of special equipment to help her
(see pictures below) sit, stand, and more recently, walk!
One of the things that Kaitlin was not supposed to ever do
was walk. It took my wife and I a long time to convince someone
to try her in a piece of equipment called a Rifton Gait Trainer.
Finally, in May, 1998, her Physical Therapist placed her in it
and while she was explaining to others how to properly position
her, Kaitlin took off! She walked for ten minutes down the hallway
at school. Everyone in the surrounding classrooms came out to
watch her in disbelief as she cruised down the hall! She was
barefoot and whining the whole time, but she kept on going. The
therapist was so excited, she called me at work right away. I
was shocked and happy at the same time! I was so proud of her;
my little girl could finally walk again!
Unfortunately, right after her triumph, she had an extremely
high fever of unknown origin and was hospitalized for three days.
She eventually recovered and walked again but had more trouble
with all the things that she had strived so hard to achieve.
She was now much more sensitive to heat and was unable to tolerate
being outdoors. Her oral eating was significantly diminished
and we had to substitute with more and more tube feedings. She
became much more irritable and upset. We took her to see her
Pediatrician on Thursday to see what we could do for her. We
made an appointment with her Neurologist for the following Wednesday.
She passed away suddenly on Saturday morning.
The State Medical Examiner, in her report, concluded that
Kaitlin had died because of the injuries she sustained in the
accident in 1995. But Kaitlin was able to overcome the odds and
she continually exceeded the expectations of everyone who worked
and cared for her. Kaitlin was truly a special little girl and
will be greatly missed by all who knew her.
Kaitlin could not have achieved all of the things she learned
to do and was still learning to do without all the special equipment
and professionals who worked with her every step of the way.
We have now set up a foundation in her name to help other special
children receive the same opportunities that Kaitlin was given.
Donate to our organization online by clicking the link below.
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